🧠New Online Registry Helps People with Parkinson’s Get Involved in Research
Join Parkinson’s Research (JPR@Research+Me) is a brand new online registry that connects people with Parkinson’s to research studies investigating new treatments that need participants.
đź’¬ Why Does This Matter?
Parkinson’s is the fastest growing neurodegenerative condition in the world — and we urgently need better treatments. Research is how we’ll find them. The problem? Many people with Parkinson’s never get the chance to take part in research — often because they don’t know where to look, or aren’t told about studies they could join.
This new registry helps change that.
🧪 What Is It and How Does It Work?
Join Parkinson’s Research is a secure and trusted online registry, securely hosted by the Newcastle upon Tyne Hospitals NHS Foundation Trust. Here you can:
âś… Sign up online in minutes
✅ Tell researchers a bit about yourself and your experience with Parkinson’s
âś… Get matched with research studies that may be a good fit
✅ Choose whether or not to take part — you’re always in control
You’ll also receive updates and newsletters about new studies, so you’re always in the loop.
👩‍🔬 Who’s Behind the Registry?
Professor Camille Carroll
Professor of Clinical Neuroscience at the Translational and Clinical Research Institute at Newcastle University & Honorary Consultant Neurologist at University Hospitals Plymouth NHS Trust
The project is led by Professor Camille Carroll, a Parkinson’s specialist at Newcastle University and a national leader in Parkinson’s research, and Professor Yan Yiannakou, Clinical Lead for the Research+Me platform, hosted by The Newcastle upon Tyne Hospitals NHS Foundation Trust.
Professor Carroll has spent years working with people living with Parkinson’s and their families. Her goal is simple: make research more accessible so more people can get involved, and so that new treatments can be found faster.
The registry is part of a wider effort by Newcastle University, NHS researchers, and partners like University College London and the University of Plymouth — all working together to make research more inclusive and effective.
👥 Created with the Parkinson’s Community
This isn’t just another research project. People with Parkinson’s and their families helped design the registry from the ground up.
Phil and Kate, who are both involved in the project, said JPR@Research+Me makes it easier to hear about research without all the usual searching and confusion.
🌍 Studies Happening Across the UK
The first major study that will be available through the registry is called EJS ACT-PD, starting in autumn 2025.
It will take place at over 40 hospitals and clinics around the UK and will test treatments that might improve Parkinson’s symptoms, or may slow Parkinson’s down in the future — something current medicines can’t do.
đź’ˇ Why Sign Up?
Even if you’re not sure about taking part in a study right away, signing up helps in many ways:
You’ll get trusted info about research that could help you or others.
You’ll be helping researchers move faster toward better treatments.
You stay informed — and in control — every step of the way.
You can listen to Camille talk about JPR@Reserch+Me talk on BBC Radio Newcastle to find out more:
🖱️ How to Join
Follow the link below to the JPR@Research+Me sign up page.
Click “Click to proceed.”
Fill in a few details — and that’s it!
You’ll start getting matched with studies and updates when they’re available.
The only way we’ll find better treatments is by working together. Every person with Parkinson’s who takes part in research brings us closer to the answers we need.
For more information about Research+Me, visit their website:
